Posts Tagged ‘Grief Recovery’

New Website and Blogs – please visit!

January 28, 2013

DSC_0292-Eleanor_ppSwimming with Maya is now available as an eBook and paperback. To learn more, visit my new website, www.eleanorvincent.com where you will find both of my blogs. I’m renaming this blog “That’s The Way Life Lives,” a saying of Maya’s when she was five years old. The focus will be on how grief and other life challenges make us stronger. My other blog, “The Cat Came Back,” humorous true tales of my two orange tabby cats, will be hosted on my new site as well.

Please visit, comment and follow the blogs, give my author page on Facebook a thumbs up, or otherwise get in touch. I look forward to hearing from you. Here is a direct link to the “That’s the Way Life Lives” blog:

http://www.eleanorvincent.com/category/thats_the_way_life_lives/

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Ten Quotes

January 2, 2013

My publisher asked me to identify ten quotes from Swimming with Maya for promotional blurbs. OK, I thought to myself, how hard can that be?

But I delayed, blaming it on the demands of the holidays. Finally, on New Year’s Day, I sat down with a hardback copy of my book and began reading.Maya Book Cover

Swimming with Maya is a crisis memoir that plumbs deeply the intense shock, grief, and anger that followed in the wake of my daughter’s accidental death. What I wrote in those pages about events now twenty-years-old continues to move and amaze me.

I read page after page, tears streaming down my cheeks, putting colored paperclips on passages so raw they take me right back to the afternoon Maya died and I made the decision to donate her organs and tissues to people in need.

The last third of the book is about how I healed my grief. Those stories – how I wrote my way, slowly and haltingly, to acceptance, worked out long buried family patterns in therapy, sought out people who inspired me, including the man who received my daughter’s heart – are the light that draws me as a reader.  Of course, I know how the story turns out.  Yet there are moments I’ve forgotten and reading about them makes the experiences alive and fresh again.

Here’s one from Chapter 3: “Maya’s chest rises and falls. The ventilator hisses, the computers beep, fiber optic cable snakes into her skull. I never knew love could be so big, that it could expand to allow even this. I have a premonition of lifelong grief rolling toward me, but I know that, once again, I am being asked to give my daughter her freedom.”

maya-19-bday-004

That was the moment I realized I had no right, nor any power, to hold my daughter here. I had to let her go. I gave in to her coma and ultimate death because they were hers not mine, a destiny I could never have imagined. That moment of surrender marked me for life.

This was not an easy book to write, nor is it easy to read.

So why read it? Is there something to be learned in these pages that is valuable enough to offset the pain?

I believe we read to experience life vividly. Good writing puts us inside the mind and heart of the writer, creating a world we can inhabit, a safe space to vicariously experience another’s life.

Swimming with Maya is vital testimony about how losses can be healed. It was worth writing.  I hope you find it worth reading. A paperback and eBook version will be available early in February from Dream of Things press at http://dreamofthings.com or you can visit the  Amazon website today at http://www.amazon.com/Swimming-With-Maya-Mothers-Discovery/dp/1931868344 for the hardback version.

The Why Question

December 18, 2012
Question Mark

Question Mark (Photo credit: auntiepauline)

Their smiles kill me.  A six year old’s gap-tooth grin flashes on the TV screen and I sob. As a grieving parent with 20 years of experience – and believe me, grief is a job – I mourn knowing there’s always more in the bank of tears. The mass killing in Newtown deposited a payload.

“Tears are the silent language of grief,” one blogger posted, quoting Voltaire.  At this moment, America is writing an epic of sorrow.

“Just wait for the funerals. Our heartbreak has just begun,” I told a friend who was crying outside the grocery store.

What can anyone possibly say to families in Newtown, Connecticut whose children will not be there to open presents on Christmas morning? For the rest of their lives, at every family gathering, there will always be a missing person.

Will tougher gun control laws or increased access to mental health services – or any of the dozens of other things we might do – bring them comfort? I hope so. But nothing we do or say will bring back their sons and daughters.

My 19-year-old daughter Maya died not because anyone willfully harmed her, thank God, but because of the confluence of bad luck and bad judgment. For years, the question why looped through my brain.  Why did Maya get on a horse bareback? Why did she end up with a devastating brain injury instead of a sprained ankle or broken arm? Why didn’t I teach her to be more careful? Why wasn’t the horse fenced or tethered? The litany is endless.

” Why” is the Big Kahuna in our search for meaning. In the wake of the mass killings in Newtown, the why question will take center stage. Even when we’ve plumbed the motives of the shooter in excruciating detail, we will never know for certain why he went on a murderous rampage aimed at six-year-olds.

After Maya died, a friend gave me this button: “Clinical studies show there are no answers.” Finally, I let go of asking why. But it took years.

“What” is a far better question. What will we do now as a society to protect our children? What can I do to comfort others and myself? What will bring more love and compassion into this world? Searching for those answers might actually lead to change and healing.

Our president asks, “Are we really prepared to say we are powerless in the face of such carnage?”

I hope and pray our answer is “Hell, no!” Let’s channel our energies into finding practical, loving steps forward.

Tears are, indeed, the language of grief. But that language, when we listen with care, can ultimately lead to a commitment to do better by ourselves and our kids.

Gratitude: A Guest Post by Madeline Sharples

November 19, 2012

I first met Madeline Sharples at a writing workshop at Esalen. I was immediately drawn to her calm, empathetic manner, her beauty, and her poems. We quickly learned that we shared some important life experiences – we were both grieving mothers and both of us were writing about our children.

Madeline’s memoir, Leaving the Hall Light On: A Mother’s Memoir of Living with her Son’s Bipolar Disorder and Surviving His Suicide, first appeared in hardback in 2010. It was recently reissued as an e-book and paperback by Dream of Things, a small press based near Chicago. Madeline is a tireless online journalist and blogger, and focuses her energies on raising awareness of mental illness and speaking out to prevent suicide. She is currently on a blog tour to promote her book and I am so pleased to host her reflections on gratitude.

Gratitude

by Madeline Sharples

The holiday season has begun and once again I view it as bittersweet. The holidays bring up too many reminders of my son Paul who died just three months shy of his 28th birthday in 1999. Since Paul was born on New Year’s Eve in 1971, the holidays are difficult for our family.

I also view the holiday season with gratitude. Besides my continued good health, the love and support of so many family members and friends, and my ability to live a productive life, that I can even think in terms of being grateful is a miracle. However, as bad as life was after Paul died, and as much as I continue to miss him, I have found out that with such a tragedy come unexpected gifts.

Paul’s death has made me a stronger person, physically and emotionally. It was as if I accomplished getting stronger through brute force. I met and interacted with people who had been through similar experiences; I took writing classes and workshops; I went back to work outside my home with my usual verve to compete on the job and to excel in my work; I embarked on a daily exercise program. I was obsessively persistent in dealing with my grief and becoming a productive person again.

I have reinvented myself as a poet and a creative writer. Four months after Paul died I found that poems just came spontaneously out of my pen. Though I write prose more than poetry, poetry is my love. My poetry writing has become my companion and my savior – something I can turn to at any time, or in any place.

I also wrote my book, Leaving the Hall Light On, with the goal of helping others who have experienced a loss like mine, I have a new writing career as a web journalist, and I’m busy writing a novel. I have been able to fulfill my life-long dream to work as a writer.

My husband and I have a stronger marriage probably because of a combination of my drive to deal with the pain, suffering, and loss, and Bob’s willingness to wait until I got better. We realized early on that our grieving processes were different, so we were patient, we gave each other a lot of space, and we respected each other. We supported each other so that we could grieve in our own ways. Plus, we’ve worked hard to stay healthy so that we can still travel and enjoy many diversions such as movies, theater, and opera and long walks at the beach near our home.

I have a terrific bond with my surviving son Ben and his new wife. Yes, I’m proud to say I’m a new mother-in-law. My son and his wife live close by and we spend quite a bit of time with them. That he and Marissa wanted to have their wedding in our family home meant so much to me. That created a very special bond between us and provided a very happy memory to replace the bad memories of the past years.

I’ve also embarked on a new mission in life – to erase the stigma of mental illness and prevent suicide, in hopes of saving lives through my writing and volunteer work. My next project is to offer the wonderful jazz music our son composed and performed as a CD to raise money for charities that share my mission. In this way, I’ll be able to perpetuate his memory and hopefully save the lives of people who suffer as Paul did.

With patience and hard work, I discovered I could go beyond surviving and actually thrive – and so these bittersweet holidays also fill my heart with gratitude that I have gone on to be a writer, a mother and wife, and a survivor.

http://www.amazon.com/gp/product/0984631720/ref=sc_pgp__m_A1M6YBJMM98MZH_1?ie=UTF8&m=A1M6YBJMM98MZH&n=&s=&v=glance

Maya’s 40th Birthday

October 4, 2012

Maya had a vibrant smile, a ready laugh, and spark of mischief in her deep brown eyes. She challenged life as well as loved it – and she was the same with me, racing from hugs to arguments. If she had lived, today would have been her 40th birthday. She lived life fast and fully. Maya left this world six months shy of turning 20 years old, still a teenager, always and forever a daredevil.

Life accretes slowly, wearing away our rough edges year by year. I’ll never know what kinds of life lessons might have changed Maya, yet I believe nothing fate threw at her could have eradicated her vivacious humor or penchant for risk – only death accomplished that.

This birthday brings up the “what ifs” in torrents. Who would Maya be now?

When I turned 40, I had an unruly teenager about to turn 16 and a more placid and easygoing 8-year-old.  Two daughters anchored my life, but I’ve remained husbandless for the last two decades. Would Maya have a family? Would she be happily married? An actress, as she (and I) had planned? Or, would she have derailed along the way?

Maya was focused and ambitious, but with a self-destructive streak. She was kind and generous but could also be selfish and cutting, her razor sharp wit used as a weapon to demolish her opponent. Fiercely loved by her family and friends, she had been abandoned by her biological father following our divorce, a loss she never got over. Always popular and the life of the party, she constantly sought to prove that she was worthy of the attention she won with her beauty and her brains.

It was this need to prove herself – to test every limit and take every dare –that led to the accident that took her life. She rode a horse bareback with no proper equipment and was unlucky enough to be thrown and land directly on her head in a field in the foothills of Mt. Diablo, so far from help that a fatal coma resulted.

But what if she had landed on her rump or shoulder, and gotten up and walked away that April afternoon? Would the close call have tempered her daredevil ways?

As her mother, I live with the echoes of these unanswered questions.

Of course, I want to believe that at 40 she’d be a happy, productive woman, living the life she dreamed was possible, using her prodigious artistic and intellectual gifts. But I’m not sure her life journey would have been smooth, given her character. What I do know, is that her sister Meghan and I would have stood with her, and that our extended network of kin would have been a bulwark in the tough times. Maya was resilient, but she turned the old saying on its head: What could have made her stronger killed her instead.

Every year on October 4, I celebrate my amazing daughter. Today, I’ll go to the cemetery, place new flowers, and polish her headstone as usual. I’ll wish her a special Happy 40th Birthday and wonder extra hard what it would be like if she was here to drink a toast to her brief, wondrous life.

The eyes of Christina Taylor Green

January 18, 2011

Last year in this country more than 6,500 grieving families said yes to organ donation. For 2011 we know many thousands more will give the gift of life. Among them: the family of Christina Taylor Green, the youngest person to lose her life in the Tuscon shootings. Only nine when she was killed, Christina came to see her congresswoman Rep. Gabrielle Giffords because she wanted to learn more about how government works. As President Obama said in his eulogy for the victims, Christina saw the world with the innocence and hope of a child.

Thanks to Christina’s parents’ decision to donate, two other children have had their sight restored. John Green, Christina’s father, says the knowledge that Christina’s corneas were able to help other children in need has been a great comfort to the family. Donation is a powerful act of generosity that affects donor families as profoundly as the recipients of their gifts.

When the unimaginable happens – a child dies – families who are able to donate can find a powerful sense of meaning even in the most senseless or tragic death. Knowing that something positive has come from your loss changes the course of grief. That’s been my experience in the wake of my daughter Maya’s death almost 19 years ago. In our case, because she was in an irreversible coma and declared brain dead, Maya was able to donate solid organs as well as tissue (including her corneas) and bone. Ultimately, our gift saved the lives of four people, restored sight for two, and may have helped upwards of 50 people with bone and tissue grafts.

Maya lives in our memories. She also continues her physical existence through the many people helped by our gift. I have been fortunate to meet two of those people – the man who received Maya’s heart, Fernando, and the woman who received her liver, Patti. Over the years, knowing Patti and Fernando has brought comfort, inspiration, and a very special bond of friendship. Both of these extraordinary people had young families at the time of their transplants in 1992. In my darkest hours, knowing that those children could still grow up with their parents soothed my heart.

A few years after Maya died, I imagined what it might be like for the two people who had received her corneas to be looking at the world through her eyes. Learning about Christina’s gift of sight brought back the feelings that inspired that poem. Here it is.

New Eyes

1.

The red squirrel darts across a pine branch,

pauses, flicks its tail this way, then that.

The December day is clear and fine.

I describe this to you,

although I don’t know if squirrels

or weather interest you.

Why tell you about your sister

or Christmas,

the clothes I still keep under my bed?

As if speech could stitch the living to the dead.

We are here, you see.  Our eyes still

wander over the everyday,

gulping it down.

2.

I imagine the gloved hands

of a surgeon, a touch

delicate as snow;

Stainless steel carving

sight out of you

grafting it to new eyes.

When she came to

did her eyes leap

to catch the world

as it ran at her?

Or, looking in

a borrowed window,

do strangers fall into the dark of you?

3.

The Hebrew word for heaven

means “another place.”

Daughter, I think of you

in alternate space,

a membrane so thin

I could reach across

our worlds running side by side,

invisible tracks, a delicious passing

or the squirrel’s flick of tail,

first on your side, then on mine.

When children die

October 22, 2010

In the last 24 hours I have learned of two families who recently lost young children – their tragedies came at me out of the blue.  I find myself wishing I could sit with the parents and listen to their stories. Since my 19-year-old daughter died suddenly in 1992, I’ve learned many things. One is how sorrow can hollow you out and make space for a new life, one you might never choose for yourself, but one where you miraculously reweave what was torn apart. The other is that telling our stories is a profoundly healing act. And these two things are inextricably linked. It was through telling my story over and over – writing it down and rewriting it again and again – that I learned to live with Maya’s death.

When your child dies, the world ends. It literally stops. You don’t believe you can ever be part of ordinary life again. And for a while you can’t. I was as close to insane as I ever want to be for the first two years after Maya died. I sat in therapy sessions and grief support groups and Compassionate Friends meetings wondering how I would be able to draw another breath, let alone heal and move on with my life. The sight of a blond head moving through a crowd made me search frantically for my missing child. For years. I simply could not believe she was gone forever. I tried to imagine how I could live the rest of my life without Maya, and back then I couldn’t see a way forward. Now I’ve lived through the grief and told the story and I know it is possible to survive. I wrote my way to recovery, making the unreal real.

When I hear of a mother or father who has lost a child I want to sit down next to them in a quiet place. I want to extend comfort and hope even when there is none, even when each moment seems so fathomless, and the loss a bottomless pit you can never climb out of. Every bereaved parent travels this road in his or her own way. At our support group meetings we used to say that there is a word for a child who loses its parents – an orphan. But there is no word for a parent who loses a child. In our culture, we don’t like to imagine what the death of a child feels like because it triggers all of our worst fears. I understand why we shy away from such a profound loss and yet I wish that grieving parents found more support in their daily lives.

Swimming with Maya is my attempt to extend that support. I can’t sit side by side with every grieving parent who may read my book, but I hope somehow that it brings comfort, and shows how it is possible to survive and ultimately live a new kind of life. I’ve also learned much from parents who have never lost a child and yet who choose to read the book. They say it’s taught them to treasure the ordinary moments with their children, and to be more present even in difficult times. This makes me deeply happy.

The children in my life now – my granddaughter Lucia, my neighbors Lily, Edim, and Logan, my great nieces and nephews, the children of my colleagues, even children in supermarkets and on airplanes whom I will never know – remind me that life goes on. There are always children to love in this world, spunky, unpredictable, lively little characters. Whether they are ours or not, we can honor their lives and the struggles and joys of their parents through the stories we listen to and the stories we tell.


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